Interest in physical activity among people with chronic or rare diseases
DOI:
https://doi.org/10.24310/riccafd.14.3.2025.22110Keywords:
health, disability, trainingAbstract
This study analyzes the interest in physical-sport activity and related habits among individuals with chronic and rare genetic diseases. A total of 70 patients (80% women), aged between 18 and 74, participated in the study—47 with chronic illnesses and 23 with rare diseases. A 25-item questionnaire was used, based on key adherence factors identified by Buscemi et al. (2023). Among respondents, 74.3% reported engaging in regular physical activity, and 88.6% stated they were aware of its benefits. Additionally, 95.7% believed that physical activity services should be offered by hospitals. The most frequently practiced activities were yoga/pilates, walking, swimming, and hiking, indicating a wide range of interests. Participants valued programs lasting between 1 and 4 hours per week, costing less than €30 per month, adapted and individualized, led by qualified professionals, and avoiding high-impact activities.
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References
Moscoso D, Moyano E. Deporte, salud y calidad de vida. Rev Esp Sociol. 2009;96(2):617–20.
Warburton D, Bredin S. Health benefits of physical activity: A systematic review of current systematic reviews. Curr Opin Cardiol. 2017;32(5):541–56.
Rimmer JH, Riley B, Wang E, Rauworth A, Jurkowski J. Physical activity participation among persons with disabilities: barriers and facilitators. Am J Prev Med. 2004;26(5):419–25.
Pinilla-Arbex J, Pérez-Tejero J. The current situation of adapted physical activity for persons with disabilities in the region of Madrid. Rev Esp Discapac. 2017;5(1):153–65.
Daar A, Singer P, Leah D, Pramming S, Matthews D, Beaglehole R, et al. Grand challenges in chronic non-communicable diseases. Nature. 2007;450(22):494–6.
Avellaneda A, Izquierdo M, Torrent-Farnell J, Ramón JR. Enfermedades raras: enfermedades crónicas que requieren un nuevo enfoque sociosanitario. An Sist Sanit Navar. 2007;30(2):177–90.
Ardila E. Las enfermedades crónicas. Rev Bioméd Inst Nac Salud. 2018;38(Supl. 1):5–6.
Orozco AM, Castiblanco L. Factores psicosociales e intervención psicológica en enfermedades crónicas no transmisibles. Rev Colomb Psicol. 2015;24(1):203–17.
Martín LA, Grau JA, Espinosa AD. Marco conceptual para la evaluación y mejora de la adherencia a los tratamientos médicos en enfermedades crónicas. Rev Cub Salud Pública. 2014;40(2):225–38.
Mayoral JM, Aragonés N, Godoy P, Sierra MJ, Cano R, González F, et al. Las enfermedades crónicas como prioridad de la vigilancia de la salud pública en España. Gac Sanit. 2016;30(2):154–7.
Warburton D, Nicol CW, Bredin S. Health benefits of physical activity: the evidence. CMAJ. 2006;147(6):801–9.
Cortés M. Las enfermedades raras. Rev Méd Clínica Las Condes. 2015;26(4):425–31.
Fuchs A, Perrin C, Ohl F. Using sport to cope with cystic fibrosis. Loisir Soc. 2014;37(2):189–204.
Le Hénaff Y, Héas S. Engagement in leisure and physical activities: analysing the biographical disruptions of a rare chronic disease in France. Sociol Health Illn. 2020;42(1):65–79.
Wittke TC, Schmidtke J, Grigull L. Rare diseases and sports: A pilot project to improve physical activity in patients with mucopolysaccharidosis. Transl Sports Med. 2018;1(5):184–90.
Buscemi V, Boaz A, Dawes H, Jaki T, Jones F, Marsden J, et al. Exploring the issues that influence how people with rare neurological conditions engage in physical activity. Disabil Rehabil. 2023;4:1–10.
La Scala Teixeira CV, Evangelista AL, Novaes JS, Da Silva ME, Behm DG. “You’re Only as Strong as Your Weakest Link”: A current opinion about the concepts and characteristics of functional training. Front Physiol. 2017;8:643.
Durstine JL, Gordon B, Wang Z, Luo X. Chronic disease and the link to physical activity. J Sport Health Sci. 2013;2(1):3–11.
Domínguez R, Garnacho MV, Maté JL. Efectos del entrenamiento contra resistencias o resistance training en diversas patologías. Nutr Hosp. 2016;33(3):719–33.
Pinzón ID, Angarita A, Correa EA. Efectos de un programa de entrenamiento funcional en la musculatura core en mujeres con fibromialgia. Rev Cienc Salud. 2014;13(1):39–53.
Buscemi V, Boaz A, Dawes H, Jaki T, Jones F, Marsden J, et al. Exploring the issues that influence how people with rare neurological conditions engage in physical activity. Disabil Rehabil. 2023;4:1–10.
Delisle VC, Gumuchian ST, Rice DB, Levis AW, Kloda LA, Körner A, et al. Perceived benefits and factors that influence the ability to establish and maintain patient support groups in rare diseases: a scoping review. Patient. 2017;10:283–93.
Grosse SD, Schechter MS, Kulkarni R, Lloyd-Puryear MA, Strickland B, Trevathan E. Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders. Pediatrics. 2009;123(1):407–12.
Maza Gutiérrez G, Balibrea Melero E, Camino Vallhonrat X, Durán González LJ, Jiménez Martín PJ, Santos Ortega A. Deporte, actividad física e inclusión social: Una guía para la intervención social a través de las actividades deportivas. Madrid: Consejo Superior de Deportes; 2011.
Katzmarzyk PT, Gledhill N, Shephard RJ. The economic burden of physical inactivity in Canada. CMAJ. 2000;163(11):1435–40.
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