Effects of psychosocioeducational interventions with caregivers of dependent persons on personal/social well-being: A systematic review

Authors

  • Ana Aguilar-Millán Residencia para Personas Mayores Novocare. Spain
  • Miguel Ángel García-Martín Universidad de Málaga. Spain

DOI:

https://doi.org/10.24310/escpsi.18.1.2025.20841

Keywords:

Systematic review, Psycho-educational programs, Caregivers, Personal well-being, Social well-being

Abstract

A systematic review was carried out with the aim of investigating the effects of psychosocioeducational intervention programs aimed at informal caregivers of dependent persons on personal and social well-being. Nine databases were searched (Web of Science, Scopus, PubMed, EMBASE, Medline, Cochrane, PsycInfo, Social Services Abstracts and Sociological Abstracts) and a total of 28 articles were reviewed. Although certain studies show that some interventions affect certain variables under analysis, no clear relationship between these interventions and improvement in these variables can be affirmed. Regarding the modality of intervention, the results allow us to conclude that multicomponent interventions are systematically more effective than others in the analyzed indicators of personal well-being and reduction of distress. In addition, a greater efficacy of the interventions on variables related to personal well-being than for social well-being is shown. These data represent an important finding for clinical practice and for future lines of research.

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References

Abades, M., & Rayón, E. (2012). El envejecimiento en España: ¿Un reto o problema social? Gerokomos, 23(4), 151-155. https://scielo.isciii.es/pdf/geroko/v23n4/comunicacion1.pdf

Barbabella, F., Poli, A., Andréasson, F., Salzmann, B., Papa, R., Hanson, E., Efthymiou, A., Döhner, H., Lancioni, C., Civerchia, P. & Lamura, G. (2016). A Web-Based Psychosocial Intervention for Family Caregivers of Older People: Results from a Mixed-Methods Study in Three European Countries. JMIR research protocols, 5(4), 1-16. https://doi.org/10.2196/resprot.5847

Birkenhäger-Gillese, E. G., Achterberg, W. P., Janus, S. I., & Zuidema, S. U. (2020). Caregiver dementia training in caregiver‐patient dyads: Process evaluation of a randomized controlled study. International Journal of Geriatric Psychiatry. 36(1), 127-135. doi: https://doi.org/10.1002/gps.5404

Boots, L. M., de Vugt, M. E., van Knippenberg, R. J., Kempen, G. I. & Verhey, F. R. (2014). A systematic review of Internet-based supportive interventions for caregivers of patients with dementia. International journal of geriatric psychiatry, 29(4), 331-344. https://doi.org/10.1002/gps.4016

Carter, G., Monaghan, C. & Santin, O. (2020). What is known from the existing literature about peer support interventions for carers of individuals living with dementia: A scoping review. Health and Social Care in the Community, 28(4), 1134-1151. https://doi.org/10.1111/HSC.12944

Casal, B., Rivera, B., & Currais, L. (2019). Enfermedad de Alzheimer y calidad de vida del cuidador informal. Revista Española de Geriatría y Gerontología, 54(2), 81-87. https://doi.org/10.1016/j.regg.2018.10.008

Cerquera, A. M., Pabón, D. K. & Lorenzo, A. (2017). Implementation of the Psychological Intervention program in Resilience for Informal Caregivers of Patients with Alzheimer's Dementia PIRCA. Universitas Psychologica, 16(2), 117-128.

Clark, I. N., Stretton-Smith, P. A., Baker, F. A., Lee, Y. E. C. & Tamplin, J. (2020). “It’s Feasible to Write a Song”: A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers. Frontiers in Psychology, 11, 1-14. https://doi.org/10.3389/fpsyg.2020.01951

Charlesworth, G., Burnell, K., Crellin, N., Hoare, Z., Hoe, J., Knapp, M., Russell, I., Wenborn, J., Woods, B. & Orrell, M. (2016). Peer support and reminiscence therapy for people with dementia and their family carers: a factorial pragmatic randomised trial. Journal of neurology, neurosurgery, and psychiatry, 87(11), 1218-1228. https://doi.org/10.1136/jnnp-2016-313736

Czaja, S. J., Lee, C. C., Perdomo, D., Loewenstein, D., Bravo, M., Moxley PhD, J. H. & Schulz, R. (2018). Community REACH: An Implementation of an Evidence-Based Caregiver Program. The Gerontologist, 58(2), e130-e137. https://doi.org/10.1093/geront/gny001

Czaja, S. J., Loewenstein, D., Schulz, R., Nair, S. N., & Perdomo, D. (2013). A videophone psychosocial intervention for dementia caregivers. The American journal of geriatric psychiatry: official journal of the American Association for Geriatric Psychiatry, 21(11), 1071-1081. https://doi.org/10.1016/j.jagp.2013.02.019

Dichter, M. N., Albers, B., Trutschel, D., Ströbel, A. M., Seismann-Petersen, S., Wermke, K., Halek, M. & Berwig, M. (2020). TALKING TIME: A pilot randomized controlled trial investigating social support for informal caregivers via the telephone. BMC Health Services Research, 20(1), 1-13. https://doi.org/10.1186/s12913-020-05523-9

Diener, E. (1994). El bienestar subjetivo. Intervención Psicosocial, 3(8), 67-113.

EDAD (2020). Encuesta de Discapacidad, Autonomía Personal y Situaciones de Dependencia del INE. https://www.juntadeandalucia.es/institutodeestadisticaycartografia/badea/operaciones/consulta/anual/102106?CodOper=b3_3335&codConsulta=102106

Faw, M. H., Luxton, I., Cross, J. E. & Davalos, D. (2021). Surviving and thriving: Qualitative results from a multi-year, multidimensional intervention to promote well-being among caregivers of adults with dementia. International Journal of Environmental Research and Public Health, 18(9), 4755. https://doi.org/10.3390/ijerph18094755

Fialho, P. P., Köenig, A. M., Santos, M. D., Barbosa, M. T. & Caramelli, P. (2012). Positive effects of a cognitive-behavioral intervention program for family caregivers of demented elderly. Arquivos de neuro-psiquiatria, 70(10), 786-792. https://doi.org/10.1590/s0004-282x2012001000007

Frias, C. E., Garcia-Pascual, M., Montoro, M., Ribas, N., Risco, E. & Zabalegui, A. (2020a). Effectiveness of a psychoeducational intervention for caregivers of People With Dementia with regard to burden, anxiety and depression: A systematic review. Journal of advanced nursing, 76(3), 787-802. https://doi.org/10.1111/jan.14286

Frías-Torres, C. E., Risco, E. & Zabalegui, A. (2020b). Psychoeducational intervention on burden and emotional well-being addressed to informal caregivers of people with dementia. Psychogeriatrics: the official journal of the Japanese Psychogeriatric Society, 20(6), 900-909. https://doi.org/10.1111/psyg.12616

Gaugler, J. E., Reese, M. & Mittelman, M. S. (2015). Effects of the Minnesota Adaptation of the NYU Caregiver Intervention on Depressive Symptoms and Quality of Life for Adult Child Caregivers of Persons with Dementia. The American journal of geriatric psychiatry: official journal of the American Association for Geriatric Psychiatry, 23(11), 1179-1192. https://doi.org/10.1016/j.jagp.2015.06.007

Gaugler, J. E., Reese, M., & Mittelman, M. S. (2018). The Effects of a Comprehensive Psychosocial Intervention on Secondary Stressors and Social Support for Adult Child Caregivers of Persons with Dementia. Innovation in aging, 2(2), 1-10. https://doi.org/10.1093/geroni/igy015

Ghosh, M., Dunham, M. & O'Connell, B. (2023). Systematic review of dyadic psychoeducational programs for persons with dementia and their family caregivers. Journal of clinical nursing, 32(15-16), 4228-4248. https://doi.org/10.1111/jocn.16570

Hansen, N. H., Bjerrekær, L., Pallesen, K. J., Juul, L. & Fjorback, L. O. (2022). The effect of mental health interventions on psychological distress for informal caregivers of people with mental illness: A systematic review and meta-analysis. Frontiers in psychiatry, 13, 1-26. https://doi.org/10.3389/fpsyt.2022.949066

Hepburn, K., Nocera, J., Higgins, M., Epps, F., Brewster, G. S., Lindauer, A., Morhardt, D., Shah, R., Bonds, K., Nash, R. & Griffiths, P. C. (2022). Results of a Randomized Trial Testing the Efficacy of Tele-Savvy, an Online Synchronous/Asynchronous Psychoeducation Program for Family Caregivers of Persons Living with Dementia. The Gerontologist, 62(4), 616-628. https://doi.org/10.1093/geront/gnab029

Hsu, C.-C., Wang, Y.-M., Huang, C.-R., Sun, F.-J., Lin, J.-P., Yip, P.-K. & Liu, S.-I. (2017). Sustained Benefit of a Psycho-educational Training Program for Dementia Caregivers in Taiwan. International Journal of Gerontology, 11(1), 31-35. https://doi.org/10.1016/j.ijge.2016.05.004

INE (2023a). Estadística del Padrón continuo. Últimos datos. Ministerio de Economía, Comercio y Empresa. https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736177012&menu=ultiDatos&idp=1254734710990

INE (2023b). Encuesta de Discapacidad, Autonomía personal y Situaciones de Dependencia (EDAD). https://www.ine.es/prensa/edad_2020_p.pdf

Keyes, C. (1998). Social well-being. Social Psychology Quarrterly, 61(2), 121-140. https://doi.org/10.2307/2787065

Koivisto, A. M., Hallikainen, I., Välimäki, T., Hongisto, K., Hiltunen, A., Karppi, P., Sivenius, J., Soininen, H. & Martikainen, J. (2016). Early psychosocial intervention does not delay institutionalization in persons with mild Alzheimer disease and has impact on neither disease progression nor caregivers' well-being: ALSOVA 3-year follow-up. International journal of geriatric psychiatry, 31(3), 273-283. https://doi.org/10.1002/gps.4321

Kor, P. P., Chien, W. T., Liu, J. Y. & Lai, C. K. (2018). Mindfulness-based intervention for stress reduction of family caregivers of people with dementia: a systematic review and meta-analysis. Mindfulness, 9, 7-22. https://doi.org/10.1007/s12671-017-0751-9

Lafuente, A.I. & Encinar, M.A. (2008). Guía práctica sobre la Atención a Personas en situación de dependencia. Ediciones Experiencia.

Liu, X., Wang, Y. & Wang, S. (2022). The efficacy of psychological interventions for depressed primary caregivers of patients with Alzheimer's disease: A systematic review and meta-analysis. Journal of nursing scholarship: an official publication of Sigma Theta Tau International Honor Society of Nursing, 54(3), 355-366. https://doi.org/10.1111/jnu.12742

Losada, A., Márquez‐González, M., Vara‐García, C., Gallego‐Alberto, L., Romero‐Moreno, R. & Pillemer, K. (2018). Ambivalence and guilt feelings: Two relevant variables for understanding caregivers' depressive symptomatology. Clinical Psychology & Psychotherapy, 25(1), 59-64. https://doi.org/10.1002/cpp.2116

Mårtensson, E., Coumoundouros, C., Sörensdotter, R., von Essen, L. & Woodford, J. (2023). Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials. Journal of affective disorders, 320, 474-498. https://doi.org/10.1016/j.jad.2022.09.093

Martín, F. J. & Gil, P. (2006). Valoración funcional en la demencia grave. Revista Española de Geriatría y Gerontología, 41(1), 43-49.

Martín-Carrasco, M., Ballesteros-Rodríguez, J., Domínguez-Panchón, A. I., Muñoz-Hermoso, P. & González-Fraile, E. (2014). Interventions for caregivers of patients with dementia. Actas españolas de psiquiatria, 42(6), 300-314.

Masanet, E. & La Parra, D. (2011). Relación entre el número de horas de cuidado informal y el estado de salud mental de las personas cuidadoras. Revista Española de Salud Pública, 85(3), 257-266.

Ministerio de Sanidad, Política Social e Igualdad (2011). Libro blanco de la coordinación sociosanitaria en España. Instituto de Mayores y Servicios Sociales.

Nguyen, L. T., Prophater, L. E., Fazio, S., Hülür, G., Tate, R., Sherwin, K., Shatzer, J., Peterson, L. J. & Haley, W. E. (2024). Project VITAL at Home: Impact of Technology on Loneliness and Well-Being of Family Caregivers of People with Dementia. Clinical gerontologist, 47(1), 149-160. https://doi.org/10.1080/07317115.2022.2123726

Nichols, L. O., Martindale-Adams, J., Burns, R., Graney, M. J. & Zuber, J. (2011). Translation of a dementia caregiver support program in a health care system--REACH VA. Archives of internal medicine, 171(4), 353-359. https://doi.org/10.1001/archinternmed.2010.548

OMS (2023). Demencia. https://www.who.int/es/news-room/fact-sheets/detail/dementia

Orgeta, V., Qazi, A., Spector, A. & Orrell, M. (2015). Psychological treatments for depression and anxiety in dementia and mild cognitive impairment: systematic review and meta-analysis. The British journal of psychiatry: the journal of mental science, 207(4), 293-298. https://doi.org/10.1192/bjp.bp.114.148130

Page, M.J., McKenzie, J.E., Bossuyt, P.M., Boutron, I., Hoffmann, T.C., Mulrow, C.D., Shamseer, L., Tetzlaff, J.M., Akl, E.A., Brennan, S.E., Chou, R., Glanville, J., Grimshaw, J.M., Hróbjartsson, A., Lalu, M.M., Li, T., Loder, E.W., Mayo-Wilson, E., McDonald, E.,...Alonso-Fernández, S. (2021). Declaración PRISMA 2020: una guía actualizada para la publicación de revisiones sistemáticas. Revista española de cardiología, 74(9), 790-799. https://doi.org/10.1016/j.recesp.2021.06.016

Parra-Vidales, E., Soto-Pérez, F., Perea-Bartolomé, M. V., Franco-Martín, M. A. & Muñoz-Sánchez, J. L. (2017). Online interventions for caregivers of people with dementia: a systematic review. Actas españolas de psiquiatría, 45(3), 116-126.

Peeters, J. M., Van Beek, A. P., Meerveld, J. H., Spreeuwenberg, P. M. & Francke, A. L. (2010). Informal caregivers of persons with dementia, their use of and needs for specific professional support: a survey of the National Dementia Programme. BMC nursing, 9, 1-8. https://doi.org/10.1186/1472-6955-9-9

Pérez-Núñez, P., O’Callaghan, C., López-Paz, J. F., Ruiz de Lazcano, A., Rodríguez, A. A. & Amayra, I. (2024). Songwriting Group Music Therapy to promote psychological adjustment in informal caregivers of elderly people with dependency: a mixed methods study. Frontiers in Psychology, 15, 1-14. https://doi.org/10.3389/fpsyg.2024.1334875

Phung, K. T., Waldorff, F. B., Buss, D. V., Eckermann, A., Keiding, N., Rishøj, S., Siersma, V., Sørensen, J., Søgaard, R., Sørensen, L. V., Vogel, A. & Waldemar, G. (2013). A three-year follow-up on the efficacy of psychosocial interventions for patients with mild dementia and their caregivers: the multicentre, rater-blinded, randomised Danish Alzheimer Intervention Study (DAISY). BMJ open, 3(11), 1-10. https://doi.org/10.1136/bmjopen-2013-003584

Piersol, C. V., Canton, K., Connor, S. E., Giller, I., Lipman, S. & Sager, S. (2017). Effectiveness of Interventions for Caregivers of People with Alzheimer's Disease and Related Major Neurocognitive Disorders: A Systematic Review. The American journal of occupational therapy: official publication of the American Occupational Therapy Association, 71(5), 1-10. https://doi.org/10.5014/ajot.2017.027581

Poon E. (2022). A Systematic Review and Meta-Analysis of Dyadic Psychological Interventions for BPSD, Quality of Life and/or Caregiver Burden in Dementia or MCI. Clinical gerontologist, 45(4), 777-797. https://doi.org/10.1080/07317115.2019.1694117

Poudevida, S., de Sola, S., Brugulat-Serrat, A., Mas-Vall Llosera, G., Castillo, A., Huesa, G., Piromalli, D. & Gramunt-Fombuena, N. (2022). Efectividad de una intervención psicoterapéutica grupal en la mejora del bienestar de personas cuidadoras de un familiar con enfermedad de Alzheimer: estudio CuiDem. Revista de neurologia, 75(8), 203-211. https://doi.org/10.33588/rn.7508.2022180

Prophater, L. E., Fazio, S., Nguyen, L. T., Hueluer, G., Peterson, L. J., Sherwin, K., Shatzer, J., Branham, M., Kavalec, A., O’Hern, K., Tate, R. & Hyer, K. (2021). Alzheimer’s Association Project VITAL: A Florida Statewide Initiative Using Technology to Impact Social Isolation and Well-Being. Frontiers in Public Health, 9, 1-7. https://doi.org/10.3389/fpubh.2021.720180

Qiu, D., Hu, M., Yu, Y., Tang, B. & Xiao, S. (2019). Acceptability of psychosocial interventions for dementia caregivers: a systematic review. BMC psychiatry, 19(23), 1-14. https://doi.org/10.1186/s12888-018-1976-4

Qureshi, A., Hargest, C., Swain, N., Aldabe, D. & Hale, L. (2023). Psychosocial interventions for building resilience of informal carers of people living with stroke: a systematic review. Disability and rehabilitation, 45(9), 1419-1432. https://doi.org/10.1080/09638288.2022.2063419

Rogero, J. (2009). Los tiempos de cuidado: El impacto de la dependencia de los mayores en la vida cotidiana de sus cuidadores. Instituto de Mayores y Servicios Sociales (IMSERSO). https://sid-inico.usal.es/idocs/F8/FDO23622/Rogero_Garcia_10.pdf

Ryan, R. M. & Deci, E. L. (2001). To be happy or to be self-fulfilled: A review of research on hedonic and eudaimonic well-being. Annual review of psychology, 52(1), 141-166.

Scerbe, A., O'Connell, M. E., Astell, A., Morgan, D., Kosteniuk, J., Panyavin, I., DesRoches, A & Webster, C. (2023). Digital tools for delivery of dementia education for caregivers of persons with dementia: A systematic review and meta-analysis of impact on caregiver distress and depressive symptoms. PLOS ONE, 18(5), 1-26. https://doi.org/10.1371/journal.pone.0283600

Stoner, C. R., Lakshminarayanan, M., Durgante, H. & Spector, A. (2021). Psychosocial interventions for dementia in low- and middle-income countries (LMICs): a systematic review of effectiveness and implementation readiness. Aging & mental health, 25(3), 408-419. https://doi.org/10.1080/13607863.2019.1695742

Tang, W. K. & Chan, C. Y. (2016). Effects of psychosocial interventions on self-efficacy of dementia caregivers: a literature review. International journal of geriatric psychiatry, 31(5), 475-493. https://doi.org/10.1002/gps.4352

Teahan, Á., Lafferty, A., McAuliffe, E., Phelan, A., O'Sullivan, L., O'Shea, D., Nicholson, E. & Fealy, G. (2020). Psychosocial Interventions for Family Carers of People with Dementia: A Systematic Review and Meta-Analysis. Journal of aging and health, 32(9), 1198-1213. https://doi.org/10.1177/0898264319899793

Terracciano, A., Artese, A., Yeh, J., Edgerton, L., Granville, L., Aschwanden, D., Luchetti, M., Glueckauf, R. L., Stephan, Y., Sutin, A. R. & Katz, P. (2020). Effectiveness of Powerful Tools for Caregivers on Caregiver Burden and on Care Recipient Behavioral and Psychological Symptoms of Dementia: A Randomized Controlled Trial. Journal of the American Medical Directors Association, 21(8), 1121-1127.e1. https://doi.org/10.1016/j.jamda.2019.11.011

Uyar, F., Özmen, D., Mavioğlu, H. & Atalay, N. (2020). Assessment of the impact of dementia care and support program in both patient and caregiver outcomes: an intervention study. Turkish Journal of Geriatrics-Turk Geriatri Dergisi, 22(4), 482-493. https://doi.org/10.31086/tjgeri.2020.127

Van Knippenberg, R. J., de Vugt, M. E., Ponds, R. W., Myin-Germeys, I. & Verhey, F. R. (2016). Dealing with daily challenges in dementia (deal-id study): effectiveness of the experience sampling method intervention ‘Partner in Sight’ for spousal caregivers of people with dementia: design of a randomized controlled trial. BMC psychiatry, 16, 1-14. https://doi.org/10.1186/s12888-016-0834-5

Waldorff, F. B., Buss, D. V., Eckermann, A., Rasmussen, M. L., Keiding, N., Rishøj, S., Siersma, V., Sørensen, J., Sørensen, L. V., Vogel, A. & Waldemar, G. (2012). Efficacy of psychosocial intervention in patients with mild Alzheimer's disease: the multicentre, rater blinded, randomised Danish Alzheimer Intervention Study (DAISY). BMJ, 345, e4693. https://doi.org/10.1136/bmj.e4693

Waller, A., Dilworth, S., Mansfield, E. & Sanson-Fisher, R. (2017). Computer and telephone delivered interventions to support caregivers of people with dementia: a systematic review of research output and quality. BMC geriatrics, 17(1), 1-20. https://doi.org/10.1186/s12877-017-0654-6

Wang, L. & Chien, W. (2011). Randomised controlled trial of a family‐led mutual support programme for people with dementia. Journal of Clinical Nursing, 20(15-16), 2362-2366. https://doi.org/10.1111/j.1365-2702.2011.03746.x

Weyer, K. (2017). Dementia - a diagnostic and therapeutic challenge. Phlebologie, 46(4), 227-230. https://doi.org/10.12687/phleb2379-4-2017

Wyman, D. L., Butler, L., Bright, P., Morgan-Trimmer, S., Budgett, J. & Cooper, C. (2022). A systematic review of process evaluations for psychosocial interventions designed to improve the wellbeing and quality of life of community-dwelling people with dementia and their carers. International Journal of Geriatric Psychiatry, 37(12), 1-13. https://doi.org/10.1002/gps.5828

Zabalegui, A., Galisteo, M., Navarro, M. M. & Cabrera, E. (2016). INFOSA intervention for caregivers of the elderly, an experimental study. Geriatric Nursing, 37(6), 426-433. https://doi.org/10.1016/j.gerinurse.2016.06.001

Zabihi, S., Lemmel, F. K. & Orgeta, V. (2020). Behavioural Activation for Depression in Informal Caregivers: A Systematic Review and Meta-Analysis of Randomised Controlled Clinical Trials. Journal of affective disorders, 274, 1173-1183. https://doi.org/10.1016/j.jad.2020.03.124

Zakaria, R. & Razak, A. A. (2017). The effectiveness of a cultural-based support group for malay dementia caregivers in Kelantan, Malaysia: a pre-post intervention study. Asean Journal of Psychiatry, 18(1). 1-11.

Zhang, S. Y., Wu, F., Tang, D. L., Rong, X. S., Guo, Q. H., Fang, M., Zhao, Q. H. & Zhao, Y. X. (2020). Pilot testing the caregiver self-management intervention for caregivers of relatives with dementia. Geriatric nursing, 41(2), 147-157. https://doi.org/10.1016/j.gerinurse.2019.08.006

Zhu, A., Cao, W., Zhou, Y., Xie, A., Cheng, Y. & Chu, S. F. (2021). Tele-Health Intervention for Carers of Dementia Patients-A Systematic Review and Meta-Analysis of Randomized Controlled Trials. Frontiers in aging neuroscience, 13, 1-10. https://doi.org/10.3389/fnagi.2021.612404

Published

2025-06-30

How to Cite

Aguilar-Millán, A., & García-Martín, M. Ángel. (2025). Effects of psychosocioeducational interventions with caregivers of dependent persons on personal/social well-being: A systematic review. Escritos De Psicología - Psychological Writings, 18(1), 48–62. https://doi.org/10.24310/escpsi.18.1.2025.20841

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Theoretical and Review Articles